Wednesday, January 26, 2011

Arianna Skipped Of To Heaven

Wednesday, January 26, 2011

Arianna Skipped Off to Heaven

(I have been needing to update everyone but haven't been able to find the words, so I cut and copied this post from my sisters blog)

As Haley said it, "Arianna skipped off to Heaven"
After a long 19 month battle with the disease Langerhans' Cell Histiocytosis (LCH) Arianna passed away Sunday, January 25, 2011.

She will be missed so dang much. The poor baby has been through more than any of us can imagine. She has been through more rounds of chemo than I can count on one hand. She had a bone marrow transplant on Dec. 23. All to no avail. She is just too perfect for this world.

I want to share a post that Haley put on her blog on December 8, 2010.

Faith

"To me faith is knowing that if you are trying to live your life right God is taking care of you no matter what happens in your life.

So many times in church you hear people talk about how heavenly father protected and blessed them because they were living there life right and paying there tithing. This is so true and I have been protected and blessed so many times for trying to follow the spirit and do what's right. But you hardly ever hear the lord let my little baby get cancer and experience all her pain because we were trying to live our lives right. But I believe having faith means knowing that what ever he has happen in our life along our journey. If we are trying to choose the right it is all a blessing and for our good and benefit. He loves us and knows what we can and can't handle and I am so grateful to him not only for my blessings and protection but for my trials as well and knowing that he will always be there for me."

Saturday, January 22, 2011

Ari's Update January 22 2011

Ari’s Update January 22, 2011
Many of you have been asking me how Ari is doing. I apologize for the delay in responding.

Travis has been in Salt has been texting me updates from the hospital in Salt Lake. I received the following text from him this morning. With his permission I am going to post it:

She is still the same. Her heart has remained strong. They anticipated her heart to fail soon because of all the work to take care of the other organs not Functioning. But her heart has remained strong. My thoughts are; are we prolonging her death having her hooked up to these machines that keep her alive? But in The moment as a parent if she is willing to fight I feel like I have to make the calls to do all we can to help her live. If we disconnected her she would die very rapidly. But how do you pull the plug when she is still fighting. It reminds me of a boxer who is getting killed in the ring but told his corner man "do not throw the towel in no matter what" "I think that was actually a scene on Rocky" then he came back and won. He was willing to die trying.
I believe Ari is Saying the same thing. "do not give up on me because I haven't given up on myself" but as a parent it is the hardest thing to allow to continue. But it is also The hardest thing to "say pull the plug" I guess what you do is trust God and fight right beside her and appreciate the moment that you have to fight with her Win or lose, as a parent I will look back and know that I didn't give up on her, God or myself and regardless of the outcome we will all win.

It reminds me of When Kaleb Pierce showed up at our door back in Highschool in Page with blood coming down the side of his face. He had gotten himself into a fight that was going to require some help. So 4 of us showed up to literally fight 15 plus people and half those boys could bench press small vehicles. But Kaleb went out there and with Zero hesitation of reservation commenced to pick out the biggest boy and convince him he was going to eat him for lunch. I knew all 3 of us were going to have The butt whooping of our lives. Yes I said 3 because the 4th had high tailed it out the other way and left just us 3 and the 3rd guy couldn't whip himself out Of a wet paper bag (as Dad would say) But because Kaleb was willing to go out with such tenacity I had no choice but to fight with him. Well for those of you that have heard The story. You know we walked away glorious. Well now looking back I have to add "Glorious Bastards"
Anyways Haley and I have remained very positive and Supportive of her through the night and Haley has been very encouraging to her. When you have such a little thing fighting so hard with so much faith, I have to Admit watching Ari fight with such faith and strength "It is easy to remain strong, positive and allowing much faith to be put into the Lord." after last night I feel extremely honored to be her father. I have never been so touched and moved by an individual’s example. I never ever would have dreamed it would be by a three year old little girl. Right now I feel no fear, no doubts, patients and full of love and hope. That doesn't mean it’s going to be sunshine and rainbows for us. and it doesn't mean the outcome is Going to be what I want but I do know that God is in control and loves us and that is enough for me. So I am just going to continue to fight right beside her and continue to trust God and endure until the answers arrive.

He sent this picture and wrote, "she is peaceful"

This little girl has been through so much and remains the sweetest little thing. I love her so much.